Search

Eulogy of Hope?

I’m sorry

I’m sorry for being

Unable to care

For myself.


A vibrant intellectual life,

An empty vessel of inneptitute

Poisoning the mind of what has been,

But no more.

No more.


Like a ghost haunting the world,

A swing rocks back and forth

No one on it.


The bed sags under the weight of lost dreams

The chair breaks as the hopelessness masses upon the doors to the psyche.

“What is hope?”

The phrase has become a mantra,

Repeated and repeated

Reflecting on the nature of hope.


“We’re close,”

But are we?

We’ve said that before

Brain tumor

Heart failure

Low testosterone


A body falling apart

The body refusing to act its age.

60 year old body in a 29 year old.

“Bullsh**,” “But you don’t look sick,”

The mantras of others bear down like bags of rocks tied to my feet

As I try to tread for water.


Sinking, falling, tired.

So tired.

So f****** tired

of all of this.


“We’ll figure this out,” “I promise I won’t give up,”

They say until they can’t and they give up

“I don’t know what it is,

But something’s wrong.”

Ladif****** dah motherf*****.


One says everything’s fine,

The second finds heart failure

One says everything looks good,

The second finds a brain tumor.

Many say “your fat,”

I ask them to elaborate,

But they recognize they can’t.


Hope?

What is it?

Is there any point?

Dysautonomia because:

I don’t sweat

I am so confused

I can’t remember things

I can’t regulate temperature.


I don’t do these things,

They are automatic.

Or at least they should be.

But they don’t.


I feel abandoned.

But not by people,

Which is a first.

I have been abandoned by my body,

Betrayed to live a life of non existence

Of non substance.


Several years ago,

I presented at conferences all of the country

I had been accepted to present in Scotland

I had published several things

I had an active blog

I was going to school

I was learning.


Now,

Now I sit in my chair or lay in my bed,

Hoping to god or the devil or whoever may listen,

Recognizing no one is,

That it will end.

That they will figure out what I have

And I have a name

A hope in the form of others who have it

A community.

A new part of my identity.


There is a possibility

That something will happen

But that has been the case with 48 other doctors before

51 before the summer ends.

51 and that’s it?

Maybe

Ho...

35 views0 comments

Recent Posts

See All

HeartBreak

Wrapping around me, Holding on tight. Surrounding me, Hard to see the light. Nights up alone, Pain so strong it’s alive. Stuck in the “Pain Zone,” I honestly don’t know how I Survive. Every day, every

Mental Health month

One of the hardest things about getting diagnosed with a chronic illness is the effects they have on your mental health. When I was going through the diagnosis process, my mental health was at an all

Finals Season

One of the hardest parts of being chronically ill in college is finals season. Most chronic illnesses flare when stress is heightened, and naturally finals season is a time that stress .levels go thro