These past few weeks have been crazy, to say the least. My mental health experienced an unexpected decline, I have started experiencing new fibro symptoms, my covid vaccine appointment got canceled due to weather and was never rescheduled, I got a 14 on an exam because my mental health just did not allow me to prepare for it, and I am still stuck at home losing my mind instead of at college. To sum it up, life feels a bit chaotic at the moment.
Amidst all the feelings of despair, I remembered all of the times people have told me there’s going to be a day I am 100% cured. And I really wish they hadn’t said that.
A lot of people have told me this- that one day all of my symptoms are going to go away or that they can cure me. I always took this with a grain of salt because even though there are a few lucky people who go into long-term remission for a lot of the illnesses I battle, they are still considered incurable by many medical professionals. However, I think part of me always gained some false hope from their words, and I don’t think the people feeding me this false hope realize how mentally draining it is.
Every time I experience a new symptom or am unresponsive to treatment, I feel like it’s my fault. I feel like my body is inherently flawed and that’s the reason I can’t be “cured” when in reality people shouldn’t be telling patients with typically “incurable” illnesses that they can definitely be cured. I understand wanting to reassure people or convey effective methods, but the diction one uses when talking to a patient or chronically ill loved one affects how they see themselves.
If you know have witnessed people experience a full recovery from fibromyalgia, please don’t tel