Search

Invisible Friend

I used to believe that everything was fixable (if that's a word) one way or another. When I was very young, it seemed that my parents could solve any issue that came my way. As I got older, it was other people who sometimes had to fill the role of fixing things.


I was content with this theory that everything was fixable until my illness came along. Lupus isn't fixable. Instead, it's more along the lines of figuring out how to manage life with a new partner of sorts.


You have to learn a new routine, adapt to the partner's habits, master the art of how you communicate with each other, and still keep your own space or identity.


Living with an illness like lupus, however, has a bit of a twist when it comes to this partner analogy. Yes, I had to find a new routine to incorporate my medications and appointments. It isn't always easy but is it something I could figure out for the most part.


Lupus doesn't seem to have a set of habits that are easy to follow, but I do know when I've pushed lupus too far.


As far as communication goes, we are still, after all these years, trying to figure that out. Lupus rarely speaks at a typical volume, either it is a whisper to faint to hear or loud yelling (flares).


I refuse to be defined by the illness. This allows me to keep being me for the most part. And since lupus tends to be invisible to most people, I treat it a bit like an invisible friend who never goes away.


Have you figured out how to live with your illness? There are several methods to use to help you get there, such as support groups, therapists, medical teams, and friends!

15 views2 comments

Recent Posts

See All

Chronic Ailment Accomplishment

I’m turning the hot water on in our master bath letting it run to heat up while I grab my jammies. I grab two towels and my conditioner bottle from my kids bathroom. Which just so happens to be our fr

What I Learned in 2020

If you are reading this, then congrats- you survived 2020! Now onto 2020 part two....just kidding(hopefully). Last year was hard. To say the least. My college experience randomly ended in March and I

The Usual

My life in agony, These ailments are mean. The pain, the struggle, It’s all too extreme. Into my fibers it has woven. “Off with my limbs!” I’m willing to tear. All of my joints burning and swollen, My

  • Facebook Social Icon
  • Instagram Social Icon
  • Twitter Social Icon

Invisible Wave is a project of Physician-Parent Caregivers (PPC), a 501(c)3 tax-exempt organization. ©  2019 Invisible Wave. All Rights Reserved.