When you have an invisible illness, there are times you feel as if you've become undetectable as a person. To your doctor, you are a series of lab tests and possibly something interesting. You are appointments to your planner or calendar. You become your illness to some degree; people don't know how to treat you if you share your information with them. That's the problem with the disease; it creates a sense of dis-ease that fills every part of your life. What if I were to tell you that it doesn't have to be this way? That's right; it doesn't have to be this way. You see, when you step up and into the role of being an empowered patient, you erase the unease. Sounds easy. It isn't. It takes work, hard work, and effort, but it makes all the difference. How do you take back your power? You gain as much knowledge as you can. You become engaged with your medical team, question things, and offer suggestions regarding your care. Get involved. Teamwork makes all the difference on this front. Understanding your treatment options, the side effects, and how they will help you reach your desired health goal means you play an active part in the decisions made around your care. It also means you are guarding your wellness rather than expecting someone else to do it for you. You share your experiences, ideas, even hopes with others, and stretch beyond that awkward sense of being uneasy. You invite others to gain knowledge while finding your way back to yourself. People stop feeling uncomfortable with what to say to you or what you can do. To your medical team, you become an engaged and knowledgeable patient. To your calendar, you have appointments as well as goals and other activities. These help you step back into the world of visibility as a person with so much to offer and share. So what do you have to lose? Need help with this, reach out to me!
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